The sleep study results came back this weekend. I don't know why they called it a sleep study because it had nothing to do with monitoring their sleep; but anyway, JD has severe reflux, which we already knew. Luckily it doesn't appear that he has acid reflux though, so that is a plus. It just means that he is not having acid sitting in his esophagus as he reflux's. He has an appointment with an ENT doc tomorrow so it will be interesting to see what he has to say. They are going to take a look at his throat and belly from the inside (apparently not too painful and very quick as they just put a tiny scope down to look around). Cole's results were actually a bit better than JD's - they said that he does not have reflux too bad and many of his apnea episodes are due to prematurity. In other words, he will grow out of it and get better as he gets bigger. We were very happy to hear this, especially because we thought he was worse off with the reflux than JD was. Their apnea and brady episodes have gotten a lot better over the last few days so I think with their growth and the meds, they are doing MUCH better.
Both C. and I got to hold the boys for a while today - they were doing great. They stay awake so much longer now when we are there and definitely recognize our voices. Both are really doing well with their pacifiers so we're hopeful that bottle feeds are not too far off at this point. But until the reflux is under control, they will stay on the continuous feeds through the feeding tube.
Not much else to report tonight ~ all in all, they had a very good weekend. We are so thankful for every day that goes by that they are doing so well. We couldn't ask for anything more. Here are a few photos from tonights visit. It's nice to be able to take pictures of JD without having to look through the glass! We took a few with Daddy's hand in the photo so you can get some perspective on how small they still are. JD is weighing in at about 3lb, 3 oz and Cole is about 2lb, 7.5 oz. They are really starting to pork up!
JD


COLE

2 comments:
Yeah!!!! They are both doing so well. They have great heads!!!! I'm so glad that you are all doing so well.
Such darling pictures of your little ones.....JD has truly filled out and baby Cole really is looking great, we can tell and everyone else says so. Keep up the commentary and we will take all the good news you are able to tell us.
Hugs to all!
S.
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